and then I did nothing else! My looks have changed a fair bit with the regrowth of my hair and lost a bit of weight, but the mental and physical torture of eczema still, sadly, goes on. However, I have made it my mission for the past 10 years to try to help people to avoid living my life with #eczema – young and old. I set up a support group with the help of a Consultant in Kingston Hospital, who swiftly dropped out… and have carried on month by month ever since. Culminating in a much better meeting place – a pub! Anyone is welcome from wherever – we have people travel from even 2 hours away! So if you want to come along – message me here! And then I also have my FB page – http://www.facebook.com/eczemasupport which now has over a 1000 likes – from round the world – please join us – you see some scary vlogs of me which I’ve just started doing! I’d like to be able to get on telly and spread the Say no to ‘No Scratching’ word – and show how you can still be a nutcase and get through the dark moments – but meanwhile I seem to be fine spreading the word through all these lovely mediums we have in the Modern Age! I’m here to help – message me! Until next time, and it won’t be 4 years, I promise…
May I ask, what caused your eczema? We struggle daily with our 3 year old’s eczema and it is a nightmare. We have been told his is due mainly to food allergies, and then not as much by his environmental allergies. We spend a lot of time making sure his life is void of all of these causes, but it never seems to get completely better.
Flare ups kill us. Much of time last night was spent rubbing him from head-to-toe with medications, keeping him from scratching himself, and just trying to make the itch and irritation go away. It kills me to watch him in pain. I have eczema as well, but mine is nothing more than a few patches here or there that resolve fairly quickly.
~Lacey
Hi Lacey, I’m so sorry to hear your little one’s plight. Mine is inherited from both sides of the family and is severe though I do have some good moments.
When my daughter was 3 she was also obliterated with eczema and I feel really, that intravenous antibiotics at 6 weeks old – possibly kicked it off. She got gradually worse until, by 5 yrs I had to take her to Great Ormond Street and put her, against my worries on immunosuppressants for 2 years. Short story is that they worked.., I do wonder about food allergies, I’m an original allergic and none of this existed the way it does now.
My advice would be to see a good consultant – I can recommend one in Windsor if that helps…
I’m happy to offer advice on your regime but need to know what you do right now…
We did topical immuno-suppressants last year for his worst case of eczema. Within days his legs turned blue. They stayed that way for 2 months. Once this disappeared he was started on a different immuno-suppressant. The same thing happened. He has some kind of vascular issue that reacts negatively with immuno-suppressants. We were very lucky he wasn’t taking an oral version, as they suspect his reaction would have been much worse.
That sounds so frightening. How awful. Do you have a kind consultant? Some are very dry (scuse the pun..)