Lately I’ve found myself likening eczema to self-harming, but really there’s a fundamental difference – I think… In that self-harming folk are in a bad state mentally when they choose to self-harm, whereas us #eczema folk harm ourselves after spending hours resisting and not wanting to give in to the terrific urge to scratch, and then having to bloody well do so! Causing momentary ecstasy followed mostly by pain and wounds. As I’ve just this minute experienced the horrificness of such an episode, leaving me feeling sore and pissed off that I gave in to the draw, I thought I’d get into bed l, covered in cream and cotton pjs, and write about it 😁. Sorry about the swearing ☹️
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So the doc on Friday said oh my god that looks like a severe allergic reaction! Prescribed a strong antihistamine and refused to let me try two different emollients.. Purely for wielding power… Nothing changes.. I’m a grown up, I’ve bought and tried one of ’em, but he said no, I’d have to book to see someone else who is the skin doctor… Load of crap….
Then I send photos of my leg (above and improving slowly,) to my lovely Prof who is a seasoned, kind dermatologist and he said it just looks like a terrible onset of eczema and the antihistamines won’t work!!! Aargh! I FEEL it was a reaction to something but who knows what and who ever can help..?
You see? I’m irritated generally!
and then I did nothing else! My looks have changed a fair bit with the regrowth of my hair and lost a bit of weight, but the mental and physical torture of eczema still, sadly, goes on. However, I have made it my mission for the past 10 years to try to help people to avoid living my life with #eczema – young and old. I set up a support group with the help of a Consultant in Kingston Hospital, who swiftly dropped out… and have carried on month by month ever since. Culminating in a much better meeting place – a pub! Anyone is welcome from wherever – we have people travel from even 2 hours away! So if you want to come along – message me here! And then I also have my FB page – http://www.facebook.com/eczemasupport which now has over a 1000 likes – from round the world – please join us – you see some scary vlogs of me which I’ve just started doing! I’d like to be able to get on telly and spread the Say no to ‘No Scratching’ word – and show how you can still be a nutcase and get through the dark moments – but meanwhile I seem to be fine spreading the word through all these lovely mediums we have in the Modern Age! I’m here to help – message me! Until next time, and it won’t be 4 years, I promise…
Well, this is my first post! Been wanting to manage a blog for such a long time – and finally I’ve done it!
I would like to consider myself an Eczema Expert. I am told I’m an “Expert Patient” so that must count for something! My constant theme which I go on and on and on about to people is “Say NO – to “No Scratching”.
My global mission (small task ahead then) is to stop people thinking they can tell us with eczema what to do. Our scratching is a COMPULSION not a CHOICE.
That’ll do for starters! Oh and I landed alopecia areata four years ago this month – fallen 3 times since then. Last fell Aug 2011. Growing back slowly. That’s another story!
Welcome to WordPress.com! This is your very first post. Click the Edit link to modify or delete it, or start a new post. If you like, use this post to tell readers why you started this blog and what you plan to do with it.
Happy blogging!
eczemaandeverything 