I’ve heard they only cover 2 weeks on skin when training, suppose I should find out for sure – but BOY do  they love to preach, restrict what you have and generally PATRONISE! I’m not really generalising either, to me they are all much of a muchness when it comes to #eczema. 

Yesterday I went to try and get different emollients, my skin has had enough of Hydrous Ointment for now (5 yrs approx) – and I got told to stop scratching within seconds, I think I just touched my arm, got told of the dangers of steroid ointment and BLA BLA BLA! I hate to admit it but I’m over 50 now – do ya think I may have a clue or 2???  Argh!

Anyway – I got my husband to sit in with me – ridiculous I feel I need to – and got mostly what I wanted. 

Today is 31 degrees and so still itch-making – however I’m going without socks as feet are calmer. Oh joy!

#eczema story on the Facebook page

So in 29 degrees today I’m wearing
trousers and my lovely royal blue Stan Smith’s with socks! I wore a short dress to a party on Saturday and ended up having to borrow some leggings from host as legs kicked off and needed to be covered to calm them. With a 20 min walk after train, through grimy London streets, I can’t risk getting dirt on my not yet healed feet or by getting itchy legs in a dress… So I’ve also got some blue lovely cotton Tom’s for when at work… And socks will come off too!

So 2 weeks since started new job with #eczema all over arms and legs, so covered myself totally  in cream and clothing so as to not let on and be judged.. Used steroid once last Thursday and seems to have broken the cycle…which I desperately needed… Bottom pic was taken 05 July and top is from now… I still have intensely itchy times but improvement is happening. Thank flippin goodness! I may even be able to wear a bit less clothing in the oncoming 33 degree heat!

Honestly I really despair sometimes. Don’t we all? 2 weeks ago when I had had a mad awful allergic reaction to something unknown, the head of our GP practice prescribed me Fexofenadine but would NOT prescribe me two emollients that I had bought and tried. Doublebase Gel seemed really to calm the awful state, better than a greasy one this time. Cheap and non damaging. But no, he wanted me to see the Dermatologist GP to just get those. Another appointment, another queuing on phone to get one at 0800 on day you need it. The guy I need only works late on Mondays, so I hope to go after work. Waited to book today. On phone holding from 0800 to 0810 – when I get through he has no evening appointments left! It made me tearful. And I didn’t give in! I said that my eczema is severe and debilitating and that I NEED TO BE ALLOWED AN APPOINTMENT IN ADVANCE. Receptionist finally gave in and gave me a 7.30 pm next Monday. A whole week away. Luckily  I’m healing but less than a week ago I was seriously considering immunosuppressants again. If I had any other illness, I would not have to wait in this way. WE SHOULD BE TAKEM MORE SERIOUSLY! The pain, anguish, and the lack of general understanding. Ok! Today’s rant over as I head into 2nd week of new job, trying to look ‘normal’!